My Diagnosis: Hypereosinophilic Syndrome -- See Myeloproliferative Variant
Often, with a rare disease like HES, it is difficult to sum up what is going on for people who ask. Until now, literature online has been too long and complex, biased or outdated -- finally here is a new link to an accurate medical report from the National Institute on Health which briefly covers Recent Advances in Diagnosis and Treatment of Hypereosinophilic Syndromes. To zero in on issues relating to my diagnosis, see comments dealing with the Myeloproliferative Variant. Click the title to open the link and read ... however, at the end of this article about my rare blood disorder you may feel confused or dissatisfied like my new Pain Specialist, who read it and confessed he didn't understand it all: "It was gobble-dee-gook to me!" (Such comfort!) From our perspective, we have had plenty time (since 2004) to learn the terminology of Hematologists, yet answers don't come easily or without serious risks. Essentially, we monitor the blood tests, use prednison