Inside-Out

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'Breaking down is as sign of health - only a psychopath doesn't break.'

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Suffering Shared, Combined Courage (Part Five)

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One last special letter (I think) to share with you that has surprised us, this time weaving 2 anonymous, generous, caring people into our lives. The overall lesson I'm learning in all of this is that good things happen when we risk telling our story: It brings us closer together; there is real hope in opening up to share of our selves and even our belongings. Ken and Joy Kutney, I have followed your story for close to a year now and just wanted to encourage you and your family. One Sunday your story was shared at the church I attend and some of your artwork was shown. (I bought "Fall Fireworks" in a large frame.) I will keep this brief but ... I had planned to make a trip to see you and all of the family and pray for you, but I could never get the time to work it out. I had gone back to God a number of times to inquire what to do and could never get clear direction. Well, here you are. God brought you to me. You will find a gift here from an anonymous giver, ...
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'Nicomekl Nature Walk' Poem - Video Presentation

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After I posted some reflections about a surprisingly renewing nature walk (following yet another series of medical tests), the serendipitous detour inspired me to write out my thoughts and then try creating this narrated poem. This is my first attempt at putting together poetry into a multimedia format . ... May you be inspired on your path to renewal. My second project, upon request for something to present at a special Christmas Eve service, is entitled ‘ What Child Is This? ’ Feel free to share it around for the holidays! https://youtu.be/XMmxQpX0Tdo (Also, you can visit my newly launched website to find links to recent original artwork) https://kkutney.wixsite.com/artbykenton
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My Diagnosis: Hypereosinophilic Syndrome -- See Myeloproliferative Variant

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Often, with a rare disease like HES, it is difficult to sum up what is going on for people who ask.  Until now, literature online has been too long and complex, biased or outdated -- finally here is a new link to an accurate medical report from the National Institute on Health which briefly covers Recent Advances in Diagnosis and Treatment of Hypereosinophilic Syndromes.  To zero in on issues relating to my diagnosis, see comments dealing with the Myeloproliferative Variant. Click the title to open the link and read ... however, at the end of this article about my rare blood disorder you may feel confused or dissatisfied like my new Pain Specialist, who read it and confessed he didn't understand it all:  "It was gobble-dee-gook to me!"   (Such comfort!) From our perspective, we have had plenty time (since 2004) to learn the terminology of Hematologists, yet answers don't come easily or without serious risks.  Essentially, we monitor the blood tests, us...
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