My Story - Living A Healthy Life With Chronic Conditions

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Follow one person's journey through life with the ups and downs of a rare blood disorder, and discover how to minimize regrets and maximize your opportunities!




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Embracing the Mystery

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My name is Joy. People often say that I live up to it, although life has sobered me some and, unfortunately, I probably laugh less and carry more burdens than I used to. I’m the wife of a pastor, and the daughter of missionaries. My husband and I met in Bible College, married, went to Regent College to do masters studies, and then right into full time ministry. We took over a church plant and ministered there for almost nine years. During that time we were very busy raising our five children, two of whom have cleft lip and palate as well as Autism. They’re all precious gifts that circle us with love. Over three long years ago my husband, Ken, started feeling very tired and experienced aching muscles and cramps. He carried on pastoring but would take days to recover after each Sunday. As doctors tried to determine what was wrong with him, we went through one of the worst phases of a long-term illness — not having validation. It wasn’t until February of 2005 that we received the diag...
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